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Showing posts with label MND. Show all posts
Showing posts with label MND. Show all posts

Tuesday, 14 September 2010

Day 4 .... and then there was one ...



So, if you've read the last post you'll know that Sue is unable to continue today.
At 8.30 this morning, Louise set off on her lone journey from Worthing to Marchwood our end point - a 70+ mile journey for this long last step.

It isn't raining but the wind is still very challenging.

I met up with her again just before Bognor Regis at around 10.30am and she re-fuelled.

Our next stop, where we will also meet Sue and Rhod is at Langstone, just before Hayling Island.

If you are in the Hampshire area and would like to come along, we are at The Pilgrim Inn pub in Marchwood this evening.

Monday, 13 September 2010

End of day 2 - stats



Yesterday's stats in full:

Miles cycled: 120

Time taken: 16 hours

Top speed : 22.1 mph

Money raised: £12.76 en route + £1080 in total on the website

Thanks again to all our sponsors and to those of you who have met these crazy cyclists en route!


Quotes from the cyclists:


Lowlights:

"my thighs are sore!"

"Sue sailing past a perfectly good toilet!"


Highlights:



~ meeting 12 red-lycra-clad Belgian cyclists en route to Dover and jumping into their group photo :)

~ flying down the hills :)


Now onto day 3 and we start from Hastings going downhill!

[Jane]

Monday, 12 July 2010

What is Motor Neurone Disease?

Motor Neurone Disease is a fatal condition for which there is no treatment and no cure. In the UK 35 people die from MND every week, and every week 35 people are diagnosed with MND. The average sufferer will live two years, only 10% will survive more than five years. The muscles waste away and the patients die from weakness and paralysis of their breathing muscles. Many doctors regard this condition as the worst disease in medicine.

MND was described by Charcot in 1869. Since then very little has been done.

Motor Neurone Disease is also known in some countries as amyotrophic lateral sclerosis (ALS) or as Lou Gehrig syndrome. In France it is called “La maladie de Charcot”

Figures show that between 1999 and 2004 6000 people died from MND, 4200 from HIV/AIDS and 92 from vCJD. During this time £33million was spent into vCJD, £45 million on HIV/AIDS and £8 million on MND.


'There is no worse disease than MND’

Dame Ciceley Saunders OMDBEFRCP, the founder of the modern hospice movement

Source: http://www.sifoundation.com/What_is_MND.htm